It’s been a couple of months since I got my stem cell transplant and I am on the mend! I had another bone marrow biopsy and results show no VEXAS or MDS. Dr. Langston said she couldn’t ask for a smoother recovery. She reiterated that stem cell trsnsplant is one of the toughest treatments modern medicine does. She was actually smiling behind her mask-which I have never seen. I’ve gone from two Emory visits per week to once every other week. It feels great to progress so smoothly and it’s nice not having to drive out to Decatur once or twice a week. I’m healing.
I’m feeling okay. The GI stuff has cleared up (with the help of anti-nausea medication.) The ankle is almost healed but I’m still wearing a small brace when I go to bed. This stupid trembling of my hands sucks and it’s making typing, which I am not great at in the first place, harder. It takes me twice the time it ordinarily would. The tremors are from the ProGraf, which is my anti-rejection drug, so I’ll just have to deal. I’ve got this weird ear thing-my ears have been popping a lot. I went to an Ear, Nose and Throat specialist who told me there was nothing wrong. It’s lessening. Besides that I have the same aches everyone else my age does.
I have taken many naps. I haven’t had a lot of energy, but that’s slowly changing. I’m getting stronger. Concentrating on stuff is still a bit of a struggle. The chemo fog comes around from time to time but it’s decreasing. I’m driving. I have gone to the gym several times in the last few weeks. So, slowly getting back out into the world. Since I have a brand new immunity system I got a fu shot and the COVID shot. I understand I have to have all three COVID shots again. I am supposed to stay out of work for two or three months and I am itching to get back to it.
Thanks for taking the time to read this. My posts might seem sporadic but a fellow has to be in the right mood to write. If anything of note happens I’ll post about it.
The Wil World 